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Contributing data

WWARN has recently updated its technical, ethical and governance frameworks to give data contributors more choice about how their data can be accessed.

 

Access to data from malaria research is critical to effectively address the rise of antimalarial drug resistance. WWARN is encouraging wider collaborations and research opportunities to tackle resistance by supporting the research community to make data accessible. By building secure mechanisms to store and access data, WWARN also supports researchers to meet the data access requirements now mandated by many funders and journals such as PLoS journals. WWARN is a registered repository which meets the RE3Data standards.

Researchers who contribute data to WWARN will sign-up to the Terms of Submission. Within these Terms, contributors are asked to choose between two options of how decisions about data access are made:

Option 1: Contributor-controlled access 

  • Details about your dataset, including title and PMID of the publication, will be listed in the WWARN Data Inventory. Researchers around the world will be able to request access to your data by completing a Data Access Request Form.

  • A copy of the Data Access Request Form will be sent to you, either by the requesting researcher or by WWARN.

  • After reviewing the form, you can decide if a copy of your data is shared with the requesting researcher.

  • If you agree to give access to your data for the purpose outlined in the form, WWARN will sign a Data Transfer Agreement with the requesting researcher. This agreement will restrict the use of the data to only what was outlined in the form that you approved.

  • After the Agreement is signed, a copy of your data in the format curated by WWARN, will be securely sent to the requesting researcher.

Option 2: Data access through an independent Data Access Committee (DAC)

  • Details about your dataset, including title and PMID of the publication, will be listed in the WWARN Data Inventory (currently in the final stages of development). Researchers around the world will be able to request access to your data by completing a Data Access Request Form.

  • The data access request form will be sent to the Data Access Committee for review.

  • The Data Access Committee will consider if the request for data meets the WWARN Terms of Data Access.  

  • If the request is approved, you will be sent a copy of the request which will include the contact details of the approved researcher. The approved researcher will also be given a copy of the contact details you provide us. The purpose of this is to encourage communication and collaboration for better data analysis.

  • If the request is approved, WWARN will sign a Data Transfer Agreement with the requesting researcher. This agreement will restrict the use of the data to only what was outlined in the approved form.

  • After the Agreement is signed, a copy of your data in the format curated by WWARN, will be securely sent to the requesting researcher.

Sign-up to receive our newsletter or follow us on Twitter and Facebook to receive further updates over the coming months about this process of diversifying our data sharing and data access options.

If you have any questions please email us at info [at] wwarn [dot] org Please get in contact if you would like to make your dataset available for publication reasons. 

Find out more about accessing data.

Comments

During the past year, we posted the original Study Protocol for a Phase 2 Controlled Trial comparing an investigational antimalarial, AQ-13, to Artemether + Lumefantrine (A+L) at wwarn.org and cannot tell whether that Study Protocol is still posted or not. If it is, we would like to post the amended version of the Study Protocol because two errors were picked up when it was reviewed at the Lancet Infectious Diseases which is now reviewing the revised version of the manuscript, that we hope they will soon accept for publication.

Whatever advice you can provide will be gratefully received.

Don Krogstad (donkrogstad@gmail.com; Cell: 504-296-4763)

All files shared through the WWARN secure system are only visible to those who have shared them and their named administrators i.e. not publicly accessible. We can of course update, at any point, old or out of date versions of files at the request of contributors.

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