WWARN is currently updating their technical, governance and ethical framework for data sharing in order to give data contributors more choice in the way they share data.
Data sharing is critical to address the rise of malaria drug resistance. To reflect the shifting landscapes of data sharing, WWARN is supporting data contributors to meet the data sharing requirements now mandated by many funders and journals, and encourage wider collaborations and research opportunities.
Soon, data contributors working in partnership with WWARN will have the option to choose from a number of data-sharing options suited to them and their research through the WWARN data platform.
The choices for data sharing will include:
- Data access requiring contributor permission: This is the current model of data access used by WWARN. The data contributor retains full control of data submitted to the WWARN Data Platform. These data will only be accessed and used with the explicit permission of the data contributor.
- Data access through an independent Data Access Committee (DAC): Data contributors with data stored in the WWARN repository will retain full control of data, but they can delegate decisions regarding access to their data to the DAC. This independent committee will review requests from the wider research community to access data for secondary analysis. TDR, the World Health Organization’s Special Programme for Research and Training in Tropical Diseases, will lead the formation and activities of the DAC and nominations are now invited from the research community. Find out more about the process here.
- Open access data: Data contributors can allow the research community unrestricted access and use of data designated as open access in the WWARN data repository. This will allow these researchers to use and build upon the findings of the data contributors without restriction. Permission from the data contributor or Data Access Committee will not be necessary.
These options will be put into effect in 2017 when the technical, governance and ethical framework has been developed. This updated process will allow for access to data while protecting the rights and privacy of the people and communities from which the data originate, and respecting the investment of the researchers who conducted the studies and collected the data.
TDR is currently recruiting members for the independent Data Access Committee through open nominations. Nominate a researcher whom you think should be part of the Data Access Committee by emailing your suggestion to malariaDAC [at] wwarn [dot] org. Nominations should include the name, institution and email address of the nominee. A brief description of their suitability for the committee would also be appreciated. Self-nomination and nomination of WWARN data contributors is welcomed.
If you have any questions please email us on info [at] wwarn [dot] org.
Find out more about accessing data.