Accessing data

The technical, governance and ethical framework of the platform are being developed to promote access to data for research while protecting the rights and privacy of the people and communities from which the data originate, and respecting the investment of the researchers who conducted the studies and collected the data.

The technical, governance and ethical framework of the WWARN platform are being developed to promote access to data for research while protecting the rights and privacy of the people and communities from which the data originate, and respecting the investment of the researchers who conducted the studies and collected the data.

Data will be made available for access later in 2017 when the revised technical, ethical and governance framework is in place. The data access process will be managed and reviewed by the independent Data Access Committee led by TDR, the Special Programme for Research and Training in Tropical Diseases.

Requests to access the datasets currently available can be made by completing the Data Access Form. For requests for data access – please send the completed form to malariaDAC [at] iddo [dot] org and refer to the Terms of Data Access.

Datasets now available for access include those which were used to produce results in the following manuscripts:

  • Tesfay Abreha, Jimee Hwang, Kamala Thriemer et al.  'Comparison of artemether-lumefantrine and chloroquine with and without primaquine for the treatment of Plasmodium vivax infection in Ethiopia: A randomized controlled trial'. Plos Medicine (2017). Doi: 10.1371/journal.pmed.1002299
  • Hoglund R, et al. Population Pharmacokinetic Properties of Piperaquine in Falciparum Malaria: An Individual Participant Data Meta-analysis. PLOS Medicine. January 2016. http://dx.doi.org/10.1371/journal.pmed.1002212
  • Madanitsa M, et al. Scheduled Intermittent Screening with Rapid Diagnostic Tests and Treatment with Dihydroartemisinin-Piperaquine versus Intermittent Preventive Therapy with Sulfadoxine-Pyrimethamine for Malaria in Pregnancy in Malawi: An Open-Label Randomized Controlled Trial. PLoS Medicine. 2016 Sep 13;13(9):e1002124. doi: 10.1371/journal.pmed.1002124.
  • Otienoburu SD, et al. Selection of Plasmodium falciparum pfcrt and pfmdr1 polymorphisms after treatment with artesunate-amodiaquine fixed dose combination or artemether-lumefantrine in Liberia. Malaria Journal. 2016 Sep 5;15:452. doi: 10.1186/s12936-016-1503-3.
  • Parasite clearance data from Nkhoma, SC, et al.  Genetic Evaluation of the Performance of Malaria Parasite Clearance Rate Metrics. Journal of Infectious Diseases. (2013) 208 (2): 346-350. doi: 10.1093/infdis/jit165

Discover more information about the Data Access Committee and the process how committee members were selected. If you have any questions, please email us on malariaDAC [at] iddo [dot] org

Sign-up to receive our newsletter or follow us on Twitter and Facebook to receive further updates over the coming months about this process of diversifying our data sharing and data access options.

Find out more about contributing data to the WWARN repository.

Comments

Asking for help to procure a fogg machine to help control malaria in our district.

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